How a Lung Cancer Survey Works for Patients

The CSI‑Lung questionnaire was created to let lung cancer patients share how they feel each day. It is used by doctors to track symptoms and see if treatments are working.

Researchers talked with nine patients to see if each question made sense and was easy to understand. They then looked at data from 2,483 lung cancer patients who filled out the form regularly. The study followed a mixed‑methods design guided by the COSMIN checklist.

Reliability was strong: most items showed a weighted kappa above 0.7 and more than 80% of answers matched on repeat checks. The survey linked up with EQ‑5D‑5L scores in a negative way, especially for tiredness, pain and shortness of breath. It also showed that sicker patients reported worse symptoms, confirming known‑group validity. Responsiveness was clear, with a negative link between symptom changes and the VAS rating.

Patients said the form was simple to finish, useful for their care team, and they liked it. Overall, the tool meets the expectations for accuracy and ease of use, supporting its role in everyday cancer care.