Few people realize how much the lack of ethnic diversity in rheumatology patient groups affects real care decisions. Most of these organizations are led by and represent white patients, even though minority groups face very different challenges with conditions like lupus and rheumatoid arthritis. Th
Patient groups, or POs, are crucial in healthcare. They stand up for patients and their families, offering support and information. With healthcare going digital, these groups face a big change. They need to move their work online. But how well are they doing this? And what problems are they running
When the world shut down due to COVID-19, patient organizations had to quickly turn to technology to keep helping those with health conditions. These groups, which normally offer everything from one-on-one support to group meetups and lobbying, had to find new ways to operate online. The sudden chan
